Help For Bentley Angelman Syndrome

My name is Lisa and my grandson has a rare genetic disorder called Angelman’s syndrome. Angelman syndrome is a genetic disorder that mainly affects the nervous system. It is severe intellectual disability, developmental disability, speaking problems, balance and movement problems, seizures, and sleep problems. Many Angelman’s syndrome children die every year from the flu with a high fever which triggers a grand mal seizure causing death. Two months ago, we thought we were going to lose him, but by the grace of God we didn’t. Bentley is a sweet boy and a true gift from God. There is no state or government funding and insurance won’t cover anything Bentley so desperately needs because Angelman’s syndrome is still considered a rare diagnosis. These things he has to have and they cost more money than we will ever have. Unfortunately, the one who suffers is my grandson. It saddens me to see him not progress because of things he needs that we simply can’t provide.. Due to unforeseen circumstances Bentley, his mother, and little brother had to relocate to there grandmother's home in Port Orange. Unfortunately a single wide mobile home is to small for all of them. This fundraisers will help our family create a safer, accessible and more comfortable environment for Bentley and his brother.







                                                                                                       Safe Bed


I am asking for any or little donations to help pay for a safe bed, wheelchair ramp or lift and help for making their room safe for Bentley. Any help provided would greatly be appreciated.